Going against the Courts of England and Wales - who all ruled in the hospital's favor from April 11 to June 27 - the couple raised over $1.6 million to pay for an unprecedented nucleoside therapy in the United States. Because of the laws under the Britsh National Health Service, Charlie's parents are not allowed to take their son to other doctors unless the hospital doctors give permission.
An American doctor testifying in the case of a British couple seeking the right to take their critically ill infant to the United States for treatment said Thursday it was worth trying an experimental therapy that has only recently emerged. "I never said that!" she exclaimed from her seat behind her barrister.
He said if they wanted to leave the court at any moment they must feel free to do so.
The couple returned after a break.
The judge at London's High Court said the case will be held in full on Thursday.
The expert claimed there was at least a 10% chance of clinically meaningful improvement - and that this was a somewhat conservative estimate.
He added that Great Ormond Street doctors had agreed to keep providing life-support treatment pending the outcome of the latest stage of litigation.
Charlie's disorder causes a severe reduction of the DNA in the mitochondria, causing progressive muscle weakness and brain damage. But its own view has not changed.
Finally, the most compelling lesson from Charlie's story is simply this - that any capable and loving parent should be able to do what is best for their child, without interference from the state.
But his parents and supporters have been fighting for him to be given a final chance, raising more than £1.3 million so he can get treatment in the U.S. called nucleoside bypass therapy. But, unlike his parents, it does not believe that Charlie can be helped.
He is now on a ventilator at Great Ormond Street Hospital, where doctors say he can not breathe, see, hear or cry. Even if it's successful, it will not reverse his brain damage and can never improve his quality of life.
Charlie's mother disputes this and the court heard she had measured the circumference of Charlie's head and found it had grown by two centimetres. This matters because whether the baby's brain is growing is a factor in the case.
Doctors, a hospital, and a court thus have been making decisions contrary to the parents' desire to care for their child and seek help elsewhere.
"His [Charlie's] welfare is the prime concern for all of us though we may approach it in different ways", Justice Nicholas Francis stated, according to CNN. In response to pleas from his parents asking for "a little more time", withdrawal of life support was delayed. "If we come to see ourselves as meat, then meat we shall become". And on Sunday, his parents handed in a 350,000-signature petition calling for their son to travel to the USA for treatment. To call this treatment unproven and experimental is a bit of an understatement.
Their decision was backed by the High Court, the Court of Appeal and Britain's Supreme Court, while the European Court of Human Rights said it would not intervene.
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